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21st Century Cures Passed…What Comes Next?

21st Century Cures Passed…What Comes Next?

The final version of the 21st Century Cures Act was signed into law by Obama on Dec. 13, 2016. The bill has 17 titles with roughly 300 subsections, addressing a wide variety of current needs in health and medicine. The campaign #CuresNow helped build the momentum that got the bill passed, but how soon can patients really expect results- especially when there are almost 6,500 rare diseases with no known cure?

Patient Data: Unlocking the Future of Research

Patient Data: Unlocking the Future of Research

FSR’s Executive Director Ginger Spitzer recently attended the 2nd Annual CBI Patient Registry Summit in Philadelphia. The conference focused on the latest news about patient registries and their role in accelerating research. The ongoing FSR Sarcoidosis Patient...

Board of Directors Welcomes Jim Davis

We are excited to welcome Jim Davis to the FSR Board of Directors. Jim is the Executive Vice President of Advera Health Analytics, Inc. He has over 12 years of expertise in biopharma market research, intelligence, and data. FSR looks forward to the impact Jim can have...
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