Sep 1, 2026
Free educational summit brings together nationally recognized specialists, healthcare professionals, patients, and care partners to improve sarcoidosis care across the region The Foundation for Sarcoidosis Research (FSR), the leading international organization...Topics: Clinician Engagement/ FSR Events/ Living with Sarcoidosis/ News
Aug 25, 2026
Lessons from a rude awakening Everyone suffering from sarcoidosis has a unique story to tell. There is nothing cookie-cutter about how the disease presents itself, how it is diagnosed, how it is treated and how the course of the disease will run. So, here’s my...Topics: Living with Sarcoidosis/ Patient Voices
Jul 14, 2026
The Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to finding a cure for sarcoidosis and improving care for those living with the disease, has announced a new partnership with Patient Advocate Foundation, the nation’s most...Topics: Awareness/ Living with Sarcoidosis/ News
Apr 8, 2025
My name is Scarlette Washlock, and I was diagnosed with sarcoidosis when I was 12 years old. I am honored that the Foundation for Sarcoidosis Research asked me to share my story. As I brainstormed what to write, I felt so fatigued that I had to sleep and try again the...Topics: Awareness/ Living with Sarcoidosis/ Patient Voices
Mar 31, 2025
For Molly Flick, the loss of her mother, Dawn Heilman, was more than just the passing of a loved one—it was a call to action. In her search for a meaningful way to honor her mother’s memory, Molly discovered the Foundation for Sarcoidosis Research (FSR). What began as...Topics: Awareness/ Living with Sarcoidosis/ Patient Voices/ Take Action/ Team KISS
Mar 25, 2025
When exposed to wildfires and during the clean up, consider the following precautions to protect your health. Stay Indoors: When possible, minimize exposure to outdoor air by staying indoors, particularly during peak smoke periods. Use air purifiers to improve indoor...Topics: Advocacy/ Awareness/ Living with Sarcoidosis/ News/ Other
Nov 18, 2024
In August of 2023, the Foundation for Sarcoidosis Research (FSR) submitted a Request for Opinion Letter on Clinical Trials and the Family and Medical Leave Act (FMLA) with the U.S. Department of Labor (DOL). On November 8, 2024, FSR received a letter of clarification...Topics: Advocacy/ Living with Sarcoidosis/ News/ Research
Oct 25, 2024
“I was diagnosed with Cutaneous Sarcoidosis in July of 2011. When I was diagnosed, I was alone and didn’t know what this disease was much less how to pronounce it correctly, which I’m still working on. Ha. After Googling Sarcoidosis, I was a tad bit scared; I...Topics: Living with Sarcoidosis/ Patient Voices
Sep 17, 2024
These last few weeks have been very rough on me. I feel as if I have been going through both a spiritual and existential crisis. Sarcoidosis has completely shifted and changed my life and how I view and live in this world. The word “silence” has been both...Topics: Living with Sarcoidosis/ Patient Voices
Jul 23, 2024
Before my heart disease journey began in Spring 2019, I was a passionate and dedicated educator and led a dynamic and fulfilling life. I was very active and busy with work, church, and my beloved Sorority of Delta Sigma Sorority, Inc. I never had any health issues. I...Topics: Awareness/ Living with Sarcoidosis/ Patient Voices
