Jul 9, 2024
My journey with neurosarcoidosis began on May 5, 2013, when I woke up in the morning with the worst headache of my life, light sensitivity, and double vision. After an evaluation by a neuro-ophthalmologist, a negative MRI, a Lumbar Puncture (which relieved my...Topics: Awareness/ Living with Sarcoidosis/ Patient Voices
Jun 19, 2024
Sarcoidosis is difficult to diagnose for a variety of reasons, Mary McGowan, CEO of the Foundation for Sarcoidosis Research, told Diagnostics World. For one, it is not limited to a single area or part of the body. “It’s a rare inflammatory disease that can impact...Topics: Living with Sarcoidosis/ News/ Research
Apr 2, 2024
The Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to finding a cure for sarcoidosis and improving care for patients, is proud to announce this year’s theme for April’s Sarcoidosis Awareness Month: Say Sarcoidosis....Topics: Awareness/ Living with Sarcoidosis/ Take Action
Feb 13, 2024
The Foundation for Sarcoidosis Research is part of a 27-member coalition dedicated to improving access to supplemental oxygen for all in need. Chasta Posey, FSR Patient Advocate, Patient Navigator, Member of the FSR Women of Color Advisory Committee, and FSR Global...Topics: Advocacy/ Awareness/ Living with Sarcoidosis/ News/ Patient Voices/ Take Action
Sep 15, 2023
Beginning September 16th, Walgreens, a pharmacy and retail leader who plays a critical role in the U.S. healthcare system by providing a wide range of pharmacy and healthcare services, including those that drive equitable access to care for the nation’s medically...Topics: Advocacy/ Awareness/ Community Partners/ COVID-19/ Living with Sarcoidosis/ News
Sep 13, 2023
My journey with Interstitial Lung Disease (ILD) started about 15 years ago, although I did not know it at the time, nor did the physicians who were then treating me. At an annual physical, at the age of 46, I mentioned that my knees were a bit sore after physical...Topics: Awareness/ Living with Sarcoidosis/ News/ Patient Voices
Feb 27, 2023
It’s easy to set hard caps on paper about how many pills a doctor can prescribe. It’s a lot harder to address the constellation of issues that lead people to illegally buy and use narcotics. The two aren’t necessarily linked, but we continue to behave as if they are....Topics: Living with Sarcoidosis/ Patient Voices
Feb 9, 2023
I had a dripping faucet in my home that was repaired recently. This annoyance somehow made me think about sarcoidosis and how it is much like a dripping faucet, except for one annoying fact that sarcoidosis cannot be repaired. Strangely comical how a dripping...Topics: Living with Sarcoidosis/ Patient Voices
Nov 17, 2022
Darlene Anita Scott is a writer and visual artist living with sarcoidosis. She applied to become an FSR Global Sarcoidosis Clinic Alliance (GSCA) Community Outreach Leader and is dedicated to sharing her sarcoidosis story with the public to raise awareness and help...Topics: Living with Sarcoidosis/ Patient Voices/ Take Action
Oct 25, 2022
“My hope is that this campaign will greatly increase awareness of sarcoidosis and encourage Black patients to participate in clinical trials. That will ultimately improve our lives and benefit everyone in the sarcoidosis community.” Calvin Harris FSR Patient...Topics: Living with Sarcoidosis/ News/ Other/ Patient Voices/ Research/ Take Action
