50 States, 5,000 Miles, $50,000: Cycling Against Sarcoidosis
The husband of a sarc warrior is planning an ambitious fundraiser, cycling 5,000 miles to raise $50,000 for sarcoidosis research.
Blog
Life as a Sarc Warrior: Advice on Friends and Family
Life with sarcoidosis can be hard and no one knows that better than our patients. This is why we reached out to you, our patients, for advice.
Ask The Ambassadors: How to Navigate Medical Expenses
We reached out to our patient ambassadors and asked for their advice on navigating the medical expenses that come with sarcoidosis.
Understanding Cardiac Sarcoidosis
Cardiac sarcoidosis is diagnosed in 2-5% of patients with systemic sarcoidosis. However, some reports are showing that the incidence of cardiac sarcoidosis in the US may be as high as 20-30% in sarcoidosis patients.
For the patients who go undiagnosed, the repercussions can sometimes be fatal. Wendy Ullmer, a 36-year-old from Wisconsin was unfortunately one of those cases, leaving her husband and their four young boys devastated by her loss. Read her story and learn the signs and symptoms that indicate you should talk to you doctor about screening for cardiac involvement.