Jul 23, 2018
Written by Margot Hahn Communications Intern Anyone grappling with a chronic illness understands how emotionally, physically, and mentally draining life can be. In between running around to multiple doctor appointments, experimenting with various medications, or...Topics: Living with Sarcoidosis
Jul 9, 2018
The members of the FSR Clinical Studies Network met on June 29th in Chicago, Illinois to determine and plan the next CSN Core Study as well as identify opportunities for additional Elective Studies via industry. Members traveled from all across the US, as well as...Topics: News/ Research
Jun 30, 2018
Any time you’re in a conversation with patients with chronic illness, the topic of alternative treatment is bound to come up. For people who live with constant pain, fatigue, and other burdens of being ill, it may seem to make sense to turn to these kinds of...Topics: Living with Sarcoidosis/ Patient Voices
Jun 21, 2018
Rare disease patients find out soon after a diagnosis that they’ll have to learn advocate for themselves- in the doctors office, to insurance companies, and even to the government. Unfortunately, rare diseases are still often overlooked in legislation, even though...Topics: Community Partners/ Take Action
