The purpose of this study is to find out if the drug ACZ885 (Canakinumab) will improve lung function and also lower inflammation in patients with pulmonary sarcoidosis. This is a double blind study. This means neither participants nor researchers will know which...
Join us to learn from expert physicians about different sarcoidosis manifestations, treatment options, and the latest advancements in research. Alongside fellow patients and loved ones, you will gain the knowledge and tools you need to better communicate with your...
We’re excited to be taking our official KISS 5K on the road again this year…watch the video to see where we’ll be April 28, 2018! For those who are unable to join us in Atlanta this coming April, consider hosting a walk in your own community...
During the month of August, while congress members were back in their local districts, Rare Disease Legislative Advocates organized their annual “In-District Lobby Days,” helping rare disease patients connect with their local representatives to meet and...
