Oct 12, 2021
How to have an effective office visit with your provider: Getting the most of your office visits can be tricky, especially if you’re not sure what you may need to talk about. But fortunately there are some tried and true ways to have a productive,...Topics: Living with Sarcoidosis/ Patient Voices
Sep 24, 2021
On September 13, 2021, aTyr Pharma announced positive results from their Phase1b/2a clinical trial for ATYR1923 in pulmonary sarcoidosis. FSR is proud to have supported this clinical trial. The trial demonstrated that ATYR1923 was safe and well-tolerated, 33%...Topics: Living with Sarcoidosis/ News/ Other/ Research
Sep 15, 2021
My journey with Interstitial Lung Disease (ILD) started about 15 years ago, although I did not know it at the time, nor did the physicians who were then treating me. At an annual physical, at the age of 46, I mentioned that my knees were a bit sore after physical...Topics: Advocacy/ Community Partners/ Living with Sarcoidosis/ Patient Voices
Aug 23, 2021
Sarcoidosis does not automatically indicate an immunocompromised diagnosis. FSR cannot determine or provide recommendations for your individual immunocompromised status. Please consult your physician for personalized medical advice. On Friday, August 13, 2021, the...Topics: COVID-19/ Living with Sarcoidosis/ News
Jul 19, 2021
We are thrilled to announce the formation of our new FSR Patient Speakers’ Bureau! This bureau consists of 14 experienced and trained sarcoidosis patient advocates who will share their personal stories to advocate for FSR and raise awareness for...Topics: Advocacy/ Living with Sarcoidosis/ News/ Other/ Patient Voices
May 20, 2021
Foundation for Sarcoidosis Research is seeking applicants for our first Women of Color Committee. African Americans in the U.S. have been the group most affected by sarcoidosis with an estimated lifetime risk as high as 2% among the population. Additionally, African...Topics: Living with Sarcoidosis/ News/ Patient Voices
May 5, 2021
Authors: Arindam Singha, MD1; Tricha Shivas, MBe2 ; Elliot D. Crouser, MD1 Since it was declared a global pandemic in March of 2020, the coronavirus disease 2019 (COVID-19) has affected over 100 million lives globally. It has been demonstrated that patients...Topics: COVID-19/ Living with Sarcoidosis/ News/ Other/ Research
Apr 14, 2021
As the nation’s leading nonprofit organization dedicated to sarcoidosis, we believe in the power of community and that game-changing results in sarcoidosis research can be made when we work together. Sarcoidosis is a rare disease, all too often misdiagnosed and...Topics: Living with Sarcoidosis/ Patient Voices
Feb 17, 2021
You are not alone. The journey of sarcoidosis feels lonely sometimes. After months or even years of misdiagnoses, difficulties of excusing yourself from events or activities, confronting challenges associated with going to work each day or caring for your family, and...Topics: Living with Sarcoidosis
Oct 20, 2020
COVID-19 has changed our world. As of October 1, 2020, the Johns Hopkins University Coronavirus Resource Center reported over 35.5 million individuals worldwide have been infected with COVID-19, including over 7 million in the United States. There are about 200,000...Topics: COVID-19/ Living with Sarcoidosis/ News
