Jun 19, 2017
Summer officially starts June 20th! It’s time for backyard barbecues, time with friends and family, and some fun in the sun. There’s no better time to join Team KISS! This summer, sarc warriors and their families are getting together to raise awareness and...Topics: Living with Sarcoidosis/ Team KISS
May 16, 2017
Gretchen Denney developed some strange symptoms around the time she was pregnant with her two children. After the birth of her first child, her daughter, Gretchen noticed an annoying and unexplained rash on her legs. A few years later, pregnant with her second child,...Topics: Living with Sarcoidosis/ Patient Voices
Apr 25, 2017
Firefighters and first responders seem to be at a higher risk of developing sarcoidosis. While this has been a theory by many over the years, like every other aspect of sarcoidosis, research was lacking. As a disease that commonly affects the lungs and shows a...Topics: Living with Sarcoidosis/ Patient Voices
Feb 13, 2017
Health insurance can be complicated, especially if you have a rare or chronic disease. Figuring out if and how you can see a certain specialist or how to afford expensive drug therapies can be exhausting,and understanding insurance lingo can feel like learning a...Topics: Living with Sarcoidosis/ Online Educational Content
Jan 17, 2017
FSR is proud to have partnered with the University of Pennsylvania and Penn Medicine to help share a new mobile app for sarcoidosis patients which allows patients to track their symptoms, disease activity and impact, and other quality of life measures, using their...Topics: Living with Sarcoidosis/ News/ Research
Jan 9, 2017
Dr. Lesley Ann Saketkoo, MD, MPH, Associate Professor of Medicine at Tulane University and a strong believer in the power of mindfulness in overcoming chronic illness, shared some helpful tips for patients to increase mental and physical strength to combat illness....Topics: Living with Sarcoidosis/ Online Educational Content
Nov 27, 2016
Below are excerpts from an article written by Dr. Lesley Saketkoo, MD, MPH called “Mind and Body Strength” Gentle Listening to the Softening Breath.” On December 8th, 2016, FSR cohosted a webinar with Inspire and the Scleroderma Foundation, hosted by...Topics: FSR Events/ Living with Sarcoidosis
Jul 22, 2016
Right now, it’s almost impossible to go a full day without hearing or reading about Pokemon Go. Nintendo has created a big buzz by bringing the 90’s game back in the form of a phone app. A lot of media attention focuses on negative stories: distracted players are...Topics: Living with Sarcoidosis/ News
