Sep 12, 2017
The application for this grant period is now closed. Learn more about the CSN. The FSR-CSN is a collaborative network of sites facilitating multi-site trials and studies in sarcoidosis research. The Network is focused on highly innovative projects with the intent of...Topics: News/ Research
Sep 1, 2017
The Foundation for Sarcoidosis Research recently signed two petitions to show our support for important polices that directly impact many sarcoidosis patients. FSR makes sure to stay informed on policies that will affect the rare disease community and our patient...Topics: News
Aug 31, 2017
Last week, the FSR staff enjoyed a visit from our Co-Founders Andrea and Reading Wilson, as well as Board of Directors Member Louise Perkins. The three board members joined staff for a strategic planning session focusing on the organization’s growth and...Topics: News
Aug 16, 2017
FSR is excited to share some breaking news from the world of rare disease research that could have a huge impact on the future of diagnosing and treating rare diseases worldwide. The International Rare Diseases Research Consortium (IRDiRC) has released an ambitious...Topics: News/ Research
Aug 8, 2017
Tracking your fitness may be a way to help manage symptoms and side effects for sarcoidosis patients. As many sarc warriors know, it can be extremely difficult to stay active when you’re living with sarc. Between the chronic pain, fatigue, shortness of breath,...Topics: News/ Research
Aug 7, 2017
The first ever meeting of the FDA’s new Patient Engagement Advisory Council (PEAC) will be this fall, as they host their first open forum focusing on the topic of clinical trials. This council came about due to legislation passed in 2012 that required the FDA to...Topics: News
Jun 27, 2017
The Foundation for Sarcoidosis Research prioritizes the long-term care of sarcoidosis patients and supports healthcare legislation that acknowledges and protects the needs of our community. As such, we feel compelled to voice our concern when pending legislation could...Topics: News
Jun 21, 2017
The Foundation for Sarcoidosis Research is sharing this urgent call to action from the National Organization for Rare Disorders (NORD): WE NEED YOU to call, email, tweet, and message your Senators… Urge them to stand up for the millions of children and adults...Topics: News/ Take Action
Jun 13, 2017
Did you know, you have access to all of your health data online? 41% of Americans have never taken advantage of their ability to see this information, and 27% reported not even being aware they had the right to! We invite you to learn more about FasterCures’ new...Topics: News/ Research
Jun 5, 2017
Ginger Spitzer, the Executive Director for the Foundation for Sarcoidosis Research, will be a panelist at this year’s Drug Information Association’s Annual Conference. The DIA 2017 Annual Meeting is the largest, longest-running event in the life sciences...Topics: Community Partners/ News
