Oct 25, 2022
“My hope is that this campaign will greatly increase awareness of sarcoidosis and encourage Black patients to participate in clinical trials. That will ultimately improve our lives and benefit everyone in the sarcoidosis community.” Calvin Harris FSR Patient...Topics: Living with Sarcoidosis/ News/ Other/ Patient Voices/ Research/ Take Action
Oct 5, 2022
FSR is proud to announce the launch of the Ignore No More: ACTe Now! (Advance Clinical Trials for Equity in Sarcoidosis) campaign. The goals of this campaign are to increase representation of Black American sarcoidosis patients in clinical trials, raise awareness of...Topics: Advocacy/ News/ Patient Voices/ Research
Aug 11, 2022
FSR is pleased to announce that the FSR Sarcoidosis Research Fellowship for 2022-2024 is being awarded to Dr. Nancy Lin from National Jewish Health, a Founding Member of the FSR Global Sarcoidosis Clinic Alliance, for her project, “Defining MicroRNA Biomarkers...Topics: News/ Research
Jul 18, 2022
On April 21, 2022, The Foundation for Sarcoidosis Research (FSR) hosted a virtual Patient Listening Session on Pulmonary Sarcoidosis with the US Food and Drug Administration (FDA). FDA Patient Listening Sessions are small, informal, non-regulatory, non-public...Topics: Advocacy/ Community Partners/ News/ Other/ Patient Voices
Jul 6, 2022
FSR is pleased to announce the appointment of Michael Klingher to the FSR Board of Directors. Klingher has over 35 years’ experience as an investment banker and investor in commercial real estate, working with Goldman Sachs and in managing his own real estate...Topics: News
Jun 22, 2022
Foundation for Sarcoidosis Research (FSR) announces the launch of the FSR Global Sarcoidosis Clinic Alliance, a groundbreaking initiative that will have a worldwide impact on advancing sarcoidosis research and improving the lives of those with sarcoidosis through...Topics: Advocacy/ News/ Research
May 19, 2022
SUNY Upstate Medical University Auyon Ghosh MD, MPH, to be presented with $50,000 Partnership Research Grant from American Thoracic Society and Foundation for Sarcoidosis Research The Foundation for Sarcoidosis Research (FSR), the leading international nonprofit...Topics: News/ Other/ Research
Apr 8, 2022
In September 2021, an article entitled “Challenges of Sarcoidosis and Its Management” (Drent et al., 2021) was published in the prestigious New England Journal of Medicine. This article, written by two active members on FSR’s Scientific Advisory Board, Marjolein...Topics: Awareness/ Living with Sarcoidosis/ News/ Online Educational Content
Feb 11, 2022
The Foundation for Sarcoidosis Research (FSR)’s team is growing to better support the needs identified by the sarcoidosis community! FSR is pleased to announce that Diane Driscoll joined the FSR team as Global Head of Clinical Engagement effective February 1, 2022. ...Topics: News/ Other
Jan 24, 2022
Act Now to Protect Drug Development. As part of the budgeting process, Congress is discussing cutting back the Orphan Drug Tax Credit for pharmaceutical companies. Most of the drugs in sarcoidosis are not FDA-approved for sarcoidosis, but are repurposed from...Topics: Advocacy/ News/ Patient Voices/ Take Action
